Bad Days, Good Days, Rare Days.

Eleven families describe what it’s like to struggle daily with eight different rare diseases. Including Epidermolysis Bullosa (EB),Syngap1, Menkes Disease, Ichthyosis, Dyskinesia, Okur Chung……………… and Bosch-Boonstra-Schaaf optic atrophy syndrome,

0
(0)

Eleven families describe what it’s like to struggle daily with eight different rare diseases.

Including Epidermolysis Bullosa (EB),Syngap1, Menkes Disease, Ichthyosis, Dyskinesia, Okur Chung……………… and Bosch-Boonstra-Schaaf optic atrophy syndrome,

0 / 5. 0

Leave a Reply

Your email address will not be published. Required fields are marked *